Autoimmune Disease and Chronic Illness-Related Support Groups

Online support group for those with arthritis, their families, and caregivers

Monthly regional support groups meeting on zoom for those with autoimmune encephalitis and their family members

Has virtual support groups regionally and for teens, caregivers of children with Autoimmune hepatitis, young adults, and newly diagnosed patients

Has Facebook support groups for those with Long Covid, and a group through the Bateman Horne Center that meets twice a month on Zoom and is open to those with Long Covid, ME/CFS, fibromyalgia, and dysautonomia as well as their family and caregivers

Support groups both in-person and online for those with chronic pain and chronic illness

Has Facebook groups for kids and families, BIPOC, teens, healthcare workers and researchers, first responders and military personnel, pregnant mothers, single parents and caregivers, and educators. Open to those with Long Covid or families/caregivers of those with Long Covid

Offers regional support groups in-person, virtual, and hybrid for those with Crohn’s or Colitis. Also offers peer support via app

Has Facebook support groups for those with dysautonomia (including POTS, and Long Covid) both regionally, and internationally as well as groups for teens, LGBTQIA+, BIPOC, men, parents, and spouses/significant others

Virtual regional support groups for those with pemphigus or pemphigoid and their caregivers

Offers a virtual monthly peer support group for those with type 1 diabetes and parents of children with Type 1 Diabetes

Has an online chatroom for kids ( ages 8-17) with Long Covid

Open to those affected by lupus. Similar to Facebook, post and reply discussion board style available 24/7

Offers state support groups as well as groups specific to Asian community, hispanic/latino community, men, youth, caregivers, and black women. Meetings are held monthly online, in person or hybrid, depending on the group. Different groups are open to different people, but all are aimed at people with lupus or a family member with lupus.

Has support groups for those with lupus in the UK (must join to find out, where, when, and how they meet)

Discussion Board style support group with many threads open to anyone with an autoimmune disease

Support group for those with Primary Biliary Cirrhosis. Information on where and how often it meets is available by email

Support Groups for those with MS in the UK

Support groups for those with MS around the US. Information about how often groups meet, and whether or not they are on zoom is available through email.

Has a long list of support groups around the country some on zoom, some in person, some meet once a month, some meet every other month

Discussion board-style support group for those with myocarditis, their families, friends, and caregivers

Online and in-person support groups for people with narcolepsy, their family, and friends

Has state-level support groups for those with adrenal diseases and Addison’s disease specifically, as well as groups for teens, caregivers and families, young adults, Spanish speakers, and pregnant women. You must email for information on how to join each group, how often they meet, and where.

Has state and regional support groups for those with alopecia areata, as well as groups specifically for children with alopecia areata and Spanish speakers. You must email to get information on how to join a group, how often they meet, and where

They also have a mentorship program for kids and teens with alopecia areata

Virtual monthly support groups for people with celiac disease

Local in-person and virtual support groups for those with MS. Meetings occur once a month

Local and online support groups for those with Rheumatoid Arthritis Living in the UK. Information on how often groups meet and where is available by email

Support group for individuals and families affected by autoimmune diseases. In-person, monthly meetings (located in Orlando, Florida)

Local support groups for people with MS

Offers support groups around the US and Canada for those with Platelet Disorders (such as Immune thrombocytopenic purpura)

Online and in-person support groups for those with Complex Regional Pain Syndrome, or Reflex Sympathetic Dystrophy

Has several online and in-person support groups around the world for those living with rare neuroimmune diseases. Online support groups meet monthly; to get information on how often in-person groups meet, you must email them. Open to those with neuroimmune diseases such as acute disseminated encephalomyelitis, acute flaccid myelitis, MOG antibody disease, neuromyelitis optica spectrum disorder, optic neuritis, or transverse myelitis

Has support groups across the US and Canada as well as groups specifically for 20-30 yr olds, families with kids who have Sjogren’s, men, and spouses and partners of those with Sjogren’s. How and when meetings are held differs by group. Open to those with Sjogren’s

Several support groups for various regions (some on Zoom, some in person). Open to those with spondylitis, also a group for caregivers and a group for parents, meeting times, places, and frequencies available upon email

Offers several support groups, including one for teens, one for Long Covid, one for postpartum mothers with chronic illness, one for African Americans, one for LGBTQIA+, one for Spanish speakers, and several for caregivers. Meetings are free and held virtually weekly, biweekly, or monthly depending on the group. Open to anyone with chronic illness or rare disease or caregivers

Online support groups that meet monthly and quarterly. Open to those with Ehlers-Danlos Syndrome or Hypermobility Spectrum Disorders

Has a variety of support groups across the country. Meeting times and locations are available once you join a group; some meet in person, some via phone or Zoom. Open to those with myositis (any type), their families, and caregivers

Offers a variety of national, state/regional support groups through Zoom. All groups meet once a month, but the days and times vary. Open to those with chronic pain, no matter the cause

Weekly and monthly Zoom support groups aimed at those living with vasculitis (caregivers and family welcome), monthly virtual support group for parents of children with vasculitis, monthly virtual support group for caregivers and family members of those with vasculitis

Offers a variety of Zoom and in-person support groups, some open to anyone with a vestibular disorder, others for a specific disease (ex: Ménière’s Disease) How often they meet varies by group