Each episode has a featured hot topic in celiac disease including an interview with an expert, a nutritional discussion, and an update on news stories relating to the gluten-free community. The podcast is available via the iTunes Podcast app for Apple devices or TuneIn app for Android devices. Subscribe and download episodes on the app store players, or click through to theBlogTalkRadio Channel.
Today’s topic explores another often-misunderstood condition, Postural Tachycardia Syndrome or (POTS) as it often called – and its possible connection to celiac disease.
In this episode we discuss a lively debate between Dr. Edwin Liu from Colorado Children’s Hopital and Dr. Benjamin Lebwohl from Columbia University’s Celiac Disease Center about the pros and cons of mass screening for celiac disease.
Vanessa and Sandy sit down with Dr. Jocelyn Silvester from Boston Children’s Hospital to discuss a quote from Dr. Peter Green: “Patients with celiac disease deserve medication.”
We hear lots of news reports about adults going on a gluten-free diet when they don’t need to be medically. A study led by a team of researchers at the Mayo Clinic now reports this is happening amongst school age children as well.
This week’s podcast is about an issue we see frequently in the Celiac Clinic at Children’s National. Getting access to safe gluten-free food in schools. Listen in as Vanessa and Joyana discuss gluten-free food in schools and how to gain access to options for your child through setting up a 504 plan.
We’ve talked about gluten-free traveling before and the risks associated with it. But today we’re going to discuss an almost entirely carefree travel opportunity. Can you even imagine boarding a cruise ship where you know they are stocked up with gluten-free options?
Today’s podcast is about advances in new ways to diagnose celiac disease. One thing we struggle a lot with is making sure that people are getting a proper celiac disease diagnosis before starting a gluten-free diet.
Today’s podcast is going to shed light on the concept of the microbiome and its possible link to the brain and disorders like dementia and Parkinson’s. For years we’ve heard that our diets could possibly be linked to different diseases…but connections between our guts and our brains? How can that be?
We have a very special episode that features some of our loyal podcast listeners…all adorable kids who have some burning questions for doctors about celiac disease and the gluten-free diet.
POTS and Celiac Disease. What’s the Link?
June 25th, 2020
Today’s topic explores another often-misunderstood condition Postural Tachycardia Syndrome or (POTS) as it often called – and its possible connection to celiac disease. Today we want to discuss the gastrointestinal symptoms associated with this condition and its possible link with celiac disease.
Hot Topics at the 2020 Columbia Celiac Symposium
March 13th, 2020
Today we are talking about the recent Celiac Disease Symposium at the Columbia Celiac Disease Center. This biennial event hosts two forums, one scientific and one clinical, and attracts, researchers, physicians, patients, parents, and nutritionists from around the world. It’s an amazing time to come together to learn, see old friends and make some new ones.
Is a Gluten-Free Diet More Aspirational Than Achievable?
March 11th, 2020
Todays’ topic is about the recent “Doggie Bag” study published in the journal Gastroenterology, which suggests that a truly “gluten-free diet may be more aspirational than achievable.” We talk a lot about strict gluten-free diets on the podcast, but this study points out that even at our strictest, we may still be exposed to gluten.
Narrowing the Gap in Health Education in Celiac Disease
February 28th, 2020
On this episode of the podcast, we’re sitting down with Dr. Alan Leichtner, the Chief Medical Education Officer at Boston Children’s Hospital to discuss celiac disease education. He’s going to talk to us about the education of patients and families as well as the education of medical professionals…and he’s going to answer some of our listener questions about what to do if you think your doctor needs a little beefing up on celiac disease!
Food Bullying and Celiac Disease
February 14th, 2020
Food bullying. It can range from teasing others at school or online in social media groups to kids throwing bread at children with celiac disease. In many cases, it’s parents that are doing the bullying…But how do you address this problem? As the issue has come up numerous times in the past few weeks in our Celiac Clinic at Children’s National Hospital, we wanted to address it on the podcast. Joining Vanessa in the studio are two of the CNMC community education specialists, Kate Raber and Joyana McMahon.
Gluten-Free Travel Finds with Leslie Bari of Gluten-Free Finds PA
January 9th, 2020
Today’s topic is an always popular one. We all love to travel, it’s one of the best parts of life. But doing so is a bit more complicated while following a gluten-free lifestyle. Today we have an expert to share some of her favorite tips for gluten-free travel. She loves to find and share her gluten-free finds and travel tips with her readers and has built quite a community doing so. We’re so happy to have her join us today to share some of her travel wisdom!
Social Media and Celiac. Has Facebook Become your Doctor?
December 19th, 2019
Most of us use social media in one way or another to connect with family, friends, and other communities that enrich our lives. But sometimes social media groups present information about medical conditions that is just wrong. It’s frightening that some people might take online posts as fact instead of talking to their doctor or other health care professional. To help us talk about these issues we have a wonderful group here in the studio…Our Children’s National Community Education Specialist Joyana McMahon….and one of our amazing board members Maureen Basye, who is a mom to a child with celiac disease and the founder of Celiac Cruise.
New Celiac Treatment Passes Phase 2 Clinical Trial
November 18th, 2019
Do we have a new drug for celiac disease? Results of a new phase 2 clinical trial using technology developed at Northwestern University showed that it is possible to induce immune tolerance to gluten in individuals with celiac disease. The researchers suggest that their findings may pave the way for treated celiac patients to eventually tolerate gluten in their diet. As we are writing these words we can hear our listeners around the world cheering for joy that there may be a magic pill to take that will allow them to eat gluten. But is that really the case?
Celiac Research- What Patients Should Do with New Information
October 25th, 2019
Today’s topic is going to follow up on the influx of research and proclamations about the future of celiac disease. How do we as patients learn how to process the relevance of research in our own lives? How do we know what is important for us? How do we understand the significance of research and how it could potentially affect us?
Hot Topics from the International Celiac Disease Symposium
October 15th, 2019
There was so much knowledge, research, and collaboration at the 2019 International Celiac Disease Symposium in Paris, France. To breakdown some of the major themes from the conference, Vanessa has three experts in the studio: Dr. Jocelyn Silvester from Boston Children’s Hospital, Dr. Ritu Verma from the University of Chicago Celiac Disease Center, and Dr. Benny Kerzner from Children’s National Medical Center.
A look at Developments in Psycho-Gastroenterology
August 7th, 2019
The field of psychology and how it relates to gastroenterology is rapidly expanding and today we are going to talk all about it…or more specifically, psycho-gastroenterology. To explain the intricacies of this unique field, we’ve got Dr. Shayna Coburn from our Celiac Disease Program at Children’s National in the studio. Dr. Coburn runs the psychological services for our Program which includes offering consultations and empirically-supported interventions to help families navigate the challenges of diagnosis of celiac disease and management of the gluten-free diet. She also lives a gluten-free lifestyle herself, so she is very equipped to help navigate this topic!
Teen Talk with Chloe
July 31st, 2019
One of the most difficult times to be diagnosed with celiac disease is during your teen years. We see patients at Children’s National on a regular basis in the clinic struggling with the challenges of being a teenager and dealing with the gluten-free diet at the same time. To help our teens feel more connected and supported, we have our awesome teen mentor Chloe in the studio with us. One of Chloe’s summer projects was working on a guide for teens and she’s here to talk all about it!
Hot Topics at Digestive Disease Week- Episode 2
June 7th, 2019
There were hundreds of presentations at Digestive Disease Week and Vanessa and Sandy were there for many of them. They’ve pulled together some of their favorites and in this episode are talking about a lively debate between Dr. Edwin Liu from Colorado’s Children’s Hospital and Dr. Benjamin Lebwohl from Columbia University’s Celiac Disease Center about the pros and cons of mass screening for celiac disease. Additionally, they dive into a study looking at the economic impact of celiac disease in regards to health care utilization, and the reliability of patients predicting gluten exposure. It’s a fabulous episode!
Live from Digestive Disease Week- Celiac Patients Deserve a Medication
May 20th, 2019
Vanessa and Sandy are live at Digestive Disease Week meeting with doctors, researchers, and patient advocacy groups about the latest and greatest developments about celiac disease and related autoimmune conditions. In this Live from Digestive Disease Week episode, they sit down with Dr. Jocelyn Silvester from Boston Children’s Hospital to discuss a quote from Dr. Peter Green, “Patients with celiac disease deserve a medication.” Tune in to see what they have to say about this bold statement and very hot topic!
Variance in Reasons for Adhering to a Gluten-Free Diet at School
April 17th, 2019
Today’s podcast hits on an important topic that comes up regularly in the media. We hear lots of news reports about people going on a gluten-free diet when they don’t medically need to be. We most often think about this as happening in adults, but a study led by a team of researchers at the Mayo Clinic now reports this is happening amongst school-age children as well.
Benefits and Barriers of Using a Gluten Sensing Device
April 4th, 2019
We’re certain that many of our listeners have heard the debates about the merits and downfalls of having a gluten sensing device, like Nima. Do they actually provide peace of mind or make users even more anxious? And, do they really work? We’re here today to discuss the results of a recent study that measures exactly that.
Schools and Gluten-Free Food- Navigating the System
March 29th, 2019
This week’s podcast is about an issue we see frequently in the Celiac Clinic at Children’s National. Getting access to safe gluten-free food in schools. For the last 10 years, our Celiac Program has worked with patients and families to set up accommodations in schools and there is a huge range in the availability and accommodations offered in the school districts local to us here in Washington DC, Maryland and Virginia, but also around the country. Listen in as Vanessa and Joyana discuss gluten-free food in schools and how to gain access to options for your child through setting up a 504 plan.
Cruising the Gluten-Free Seas
March 22nd, 2019
Today’s podcast is an exciting one. We’ve talked about gluten-free traveling before and the risks associated with it. But today we’re going to discuss an almost entirely carefree travel opportunity. Can you even imagine boarding a cruise ship where you know they are stocked up with gluten-free options?
The Link Between the Microbiome, the Gut and the Brain
February 27th, 2019
Today’s podcast is going to shed light on the concept of the microbiome and its possible link to the brain and disorders like dementia and Parkinson’s. For years we’ve heard that our diets could possibly be linked to different diseases…but connections between our guts and our brains? How can that be?
New Test to Diagnose Celiac Disease with No Gluten Challenge
February 13th, 2019
Today’s podcast is about advances in new ways to diagnose celiac disease. One thing we struggle a lot with is making sure that people are getting a proper celiac disease diagnosis before starting a gluten-free diet. Often times patients will go on a gluten-free diet to try it out to see if symptoms improve…they all of a sudden feel great so go to the doctor to get tested, only to learn that they can’t actually get tested for celiac unless they are eating gluten…..But a new test is hoping to change that by allowing for celiac screening while someone is on a gluten-free diet.
Ask the Gluten-Free Experts
January 30th, 2019
Today’s podcast is dedicated to our wonderful patients and families at Children’s National. A few months ago, we did a Hot Topics podcase answering some of the most common questions we hear in the Clinic. That podcast was so well-received, we wanted to follow up with another one. So, we asked you all to email us your questions and you definitely did! Here are all of the answers!
Genetics and Disease Development
January 25th, 2019
Today’s podcast is about a topic that that is very important in the lives of people with celiac….genetics. Close to 40 percent of the population in America carries these genes, but only 3 percent of them go on to develop celiac…why would they do so?
Globally Gluten-Free! GF Dining Destinations Around the World
December 26th, 2018
Traveling is such an incredible part of life. There are so many sights around the world and thankfully, there are also lots of places with amazing gluten-free options. To discuss some of the best (and worst) destinations, we’ve got the Gluten-Free Globetrotter Erin Smith! She’s an avid traveler and has lots of wisdom to pass along!
Budget Bytes! Tips for Saving Money with a Gluten-Free Diet
December 20th, 2018
With $6.00 loaves of bread and pasta that’s double the price as its gluten-containing counterparts, sticking to a gluten-free diet can become quite an expensive task. To help our listeners keep some extra change in their pockets, we’ve got Beth Moncel of Budget Bytes in the studio today to discuss lots of money-saving tips for gluten-free consumers
Gluten-Free Meal Delivery Services Part II
November 29th, 2018
Today’s podcast is all about meal delivery services. For those of you who have been listening since the beginning of our Podcast, you may remember the one last spring where we talked about Hello Fresh, Blue Apron, and Terras Kitchen. We received so many great comments about that episode that we decided to do an update and include even more services that offer gluten-free meal delivery options including Plated and Sunbasket. We know how busy you all are and how helpful it can be to find some convenient options to make the hectic dinner process a little bit easier.
Gluten Contamination at School- Is it Possible
November 17th, 2018
Can kids be exposed to gluten at school? During this week’s podcast, Vanessa and Joyana discuss an exciting project that hopes to determine the potential levels of gluten exposure for kids with celiac disease in a school setting.
Pregnancy Complications and Celiac Disease
September 12th, 2018
Today’s podcast is about how celiac disease may affect pregnancy for women. Our guest is Dr. Louise Grode from the Department of Medicine at Horsens Regional Hospital in Denmark who is the lead author on a new study published in the journal Human Reproduction. The study team looked at the chance and timing of pregnancy as well as potential complications including live and stillbirths, molar and ectopic pregnancies, and miscarriages, and found an increased risk of stillbirths and miscarriages in women with undiagnosed celiac disease. We are so excited to have Dr. Grode join us to talk about this important research and how women with celiac disease can plan to have successful pregnancies.
Parenting a Child with Celiac Disease
September 6th, 2018
Today’s podcast is all about parenting a child with celiac disease. We know this is a super important topic to many of our listeners – you’re working every day to help your kids understand the lifelong need for a gluten-free diet and how to navigate different social situations. Thankfully there are many parents who have gone through this already and two of them are joining us in the studio today to talk about their journey of raising kids with celiac disease. We have Katie Rothenberg who is mom to 7-year-old Nadia and Jon Landy who is dad to a teenager, Matthew. Both are members of the Celiac Program Advisory Board at Children’s National and we are so glad to have them joining us to share their experiences of strategies that were great, and some that they might change in the future.
Iron, Calcium, and Vitamin D- Naturally Boosting Nutrition in Your Diet!
August 23rd, 2018
Today’s podcast is all about natural ways to boost important nutrients in our diet, specifically iron, calcium, vitamin D, and magnesium. This is especially important for patients with celiac disease who may be nutrient deficient. To help us dive into the topic, we have Dietitian Kathleen Walters in the studio to talk about these specific nutrients and foods that contain lots of them.
Teen Talk! Gluten-Free Advice for Teens from Teens!
August 1st, 2018
Today’s podcast is very special! We are excited to welcome two of our teen mentors from the Celiac Program at Children’s National onto the show! Joining us in the studio are Dana Musser and Miranda Neusner. Both were diagnosed with celiac disease at a very young age and have expertly navigated their gluten-free diets through various stages of childhood. They are loaded with awesome tips for teens living a gluten-free lifestyle and we so thrilled that they are sharing their experiences about dining in restaurants, going on dates, and participating in school activities with all of our listeners.
Becoming a Gluten-Free College Kid
July 18th, 2018
Today’s podcast is a very special interview with a family who has been close to our celiac program for over a decade! Abe Kuhn was diagnosed with celiac disease in 2001 when he was just a tiny little boy with many health issues. Now, 17 years later, Abe is a thriving college student, basketball player, and peer mentor for children with celiac disease. Today Abe is going to talk to us about the college search process and what the last two years have been like for him being on his own at school. We also have Abe’s mom and dad in the studio to talk about the experience of being the parents of a child with celiac and sending him off to college.
Inspiring Celiac Kids Through Reading
July 3rd, 2018
Today’s podcast is about empowering young children with celiac disease to own their celiac disease through reading. Author Kaitlin Puccio is in the studio to talk with us about her book, The Adventures of Celia Kaye, and her mission to encourage children with celiac disease not to see their condition as a limitation, rather as an inspiration. Her book is about a little girl who has celiac disease and believes she needs to hide it from her friends. She goes to great lengths to keep her diagnosis a secret by becoming a storyteller.
From Your Belly To Your Brain
June 27th, 2018
Today’s podcast is about the connection between our bellies and our brains. While it seems like the two are totally different parts of our bodies, they are actually very closely connected and the food we eat can dramatically affect how our brains function. To help us better understand this fascinating topic, we have Dr. Ilana Kahn in the studio. Dr. Kahn is the Clinical Director of Neuroimmunology at Children’s National Medical Center and is currently leading a research team investigating the link between celiac disease and neurological conditions. My co-host Ellen Wilcox sat down with Dr. Kahn. Take it away Ellen!
Devices to Measure Gluten in Stool and Urine
June 15th, 2018
Today’s podcast is about new devices that will allow people to measure the amount of gluten they are consuming without drawing blood and instead of looking at gluten that is excreted in urine and stool. To help our listeners better understand these devices, how to use them, and current research underway to validate their effectiveness, we have Dr. Jocelyn Silvester from Boston Children’s Hospital in the studio. Dr. Silvester is a leader in the celiac disease community and just finished a fascinating study called the DOGGIE Bag Study that looked at the gluten content in the urine and stool of patients with celiac disease as well as measured the gluten levels in the food they ate on correlating days. We know you’ll be just as interested in her work as we are!
Ask the Gluten-Free Expert! Your Biggest Questions Answered
May 30th, 2018
Bring on the questions! We get so many questions here at Children’s National that we decided to dedicate an entire podcast episode to answering them! Vanessa and Joyana will answer questions about gluten in medications in the emergency room, package labeling on cookies, kissing your boyfriend, proteins in grains, cleaning your kitchen, gluten in laundry detergent, and the use of hand sanitizer at school.
Anorexia, Bulimia, and Celiac. What’s the Link?
May 2nd, 2018
You may have seen the recent headlines about a new study showing that women with celiac disease could be twice as likely as the general population to develop anorexia. For this particular study, researchers looked at more than 100,000 women and found that women over the age of 20 with celiac disease were doubly likely to develop anorexia later in life, and women diagnosed before the age of 19 were nearly 5 times more likely to be diagnosed with anorexia than healthy women.
Summer Camp the Gluten-Free Way!
April 18th, 2018
For many children, attending summer camp is the best part of their childhood. They make lifelong friends, go on incredible adventures and eat tasty treats like s’mores around the campfire! For some kids, being diagnosed with celiac disease and needing to be on a gluten-free diet can put a slight snag in summer plans. But, today’s guest is here to tell us that the gluten-free diet should not interfere with your summer fun…and in fact, every child can experience one of childhood’s most fun rites of passage! We are so excited to have Anne Tursky the assistant executive director of the New Jersey Y Camps and Pninit Cole, a gluten-free advocate, as well as an NJY Camp parent whose daughter has celiac disease. Anne and Pin spearheaded the gluten-free program at NJY Camps where kids can enjoy a safe, tasty, and super fun summer.
From Your Gut to your Heart
April 4th, 2018
Recent studies have shown that people living with celiac disease have an increased risk of developing heart disease. One study published last year that looked at adults – found that patients with celiac disease were almost twice as likely as healthy individuals to develop cardiovascular disease. Another study published in the Journal of Pediatric Gastroenterology and Nutrition looked at adolescents and found that by age 17, the prevalence of risk factors for heart disease was higher in adolescents with celiac disease than in the general population. So, what is the connection between our guts and our hearts? To help us dive into this topic we have Dr. Michele Mietus-Snyder, a preventive cardiologist from Children’s National Medical Center in the studio.
Are You Too Strict with Your Gluten-Free Diet?
March 28th, 2018
We all know that the only treatment for celiac disease is a lifelong gluten-free diet and that cheating regularly can lead to long-term health complications like malnourishment and other autoimmune disorders. We hear our doctors telling us constantly that even a small amount of gluten can cause damage to the gut, but is it possible for our gluten-free diets to become overly strict and lead to being unhappy? Perhaps…
College Dining the Gluten-Free Way
March 20th, 2018
When Vanessa was diagnosed with celiac disease in 2004, going to college on a gluten-free diet was a difficult experience. She remembers the extremely limited options available at her university and how hard it was to find safe food. But, 14 years later, times have definitely changed and now colleges and universities are developing outstanding gluten-free programs to keep their students with celiac disease well fed and very culinarily happy! To talk about going to college on a gluten-free diet and how the University of Connecticut has set up a comprehensive gluten-free program, we’ve got Robert Landolphi in the studio. After hearing what he has to say, you’ll want to go back to college just to eat in his gluten-free dining halls!
Do Vaccines Contain Gluten?
February 21st, 2018
Do vaccines contain gluten? During today’s podcast, we’re going to discuss whether or not vaccines are safe for people living with celiac disease. While the truth is that vaccines do not contain any form of gluten, it turns out that according to a new study, about one-quarter of people with celiac disease and more than 40 percent of people with gluten sensitivity do not believe that vaccines are safe for people on a gluten-free diet. And, a large percentage of these folks are forgoing critically important vaccinations like the flu vaccine because of misinformation. To discuss this new study and where some of the misconceptions are coming from, we’ve got Dr. Benjamin Lebwohl in the studio. He’s the director of clinical research at the Celiac Disease Center at Columbia University and very involved in the gluten-free community.
Controversies in Celiac Disease
February 15th, 2018
There is so much information floating around the world wide web about celiac disease and so much of it is conflicting. We’re talking about things like “does my child need a biopsy if they have a positive blood test for celiac disease. It seems like such an invasive procedure that they don’t really need.” Or, “what does genetic testing actually mean?” And, should doctors across medical disciplines be routinely screening for celiac disease even if their patients don’t have obvious symptoms.
FDA Moves to Advance Labeling of Gluten in Medications
January 18th, 2018
When you’re diagnosed with celiac disease, you typically think of gluten as being in food, but it’s important to remember that gluten can hide in other products like prescription drugs, over-the-counter medications, and nutritional supplements. Until recently, few regulations were in place to help consumers with celiac disease identify gluten in their medicines. But new steps by the FDA may help make the process easier to determine the gluten-free status of a drug. To help us discuss this important topic, we’ve got Dr. Steve Plogsted in the studio. He’s a clinical pharmacist at Nationwide Children’s Hospital and maintains the GlutenFreeDrugs.com website.
Research on Infants Aims to Identify Why we get Celiac Disease
January 11th, 2018
Why do some people develop celiac disease and others don’t? We know there is a genetic component with the HLA genes and some environmental factors, but to date, researchers are still unclear why exactly the disease develops. To help dive into this topic, we have Dr. Maureen Leonard, the clinical director for the Center for Celiac Research and Treatment at Massachusetts General Hospital in the studio. Dr. Leonard is leading a team of researchers as they investigate how our genetics and environmental factors affect the development of celiac disease in hopes of predicting who will get the disease…and they’re doing it by looking at babies.
Holiday Travel: Being a Gluten-Free House Guest
December 12th, 2017
Many of us travel to see family and friends for the holidays. It is already a stressful time with traveling and being out of our comfort zones. But for people with celiac disease, we have an added challenge. Staying in homes that are most often not gluten-free. So how do we navigate these situations? What can we do to prepare to be a gluten-free house guest?
Sorting Through the Gluten-Free Marketplace
December 7th, 2017
With thousands of gluten-free products on grocery store shelves, how do you pick the best? Josh Schieffer from the Gluten-Free Buyers Guide had this same thought and nearly a decade later he’s mastered helping consumers connect with the tastiest products on the marketplace. Through a product nomination process and allowing over 3,000 gluten-free individuals to cast their ballots, the Gluten-Free Buyers Guide narrows down the best and most delicious products in over 60 categories! Josh is in the studio to talk more about it.
Healthy and Happy Holiday Baking
December 2nd, 2017
Whether it’s gluten-free, a nut allergy, or a sensitivity to dairy, lots of families are juggling multiple food intolerances during the holidays. To help our listeners plan for a tasty holiday season, we’ve got Jaimie Mertz from the Red Bandana Bakery in the studio to discuss the opening of her new bakery in Bethesda, MD, and how she is able to expertly bake for customers with a variety of special diets.
Legislative Priorities for Gluten-Related Conditions: Past, Present, and Future
November 30th, 2017
Several laws offer protection for people living with celiac disease, like the Affordable Care Act, the Food Allergen Labeling and Consumer Protection Act, and the Gluten-Free Food Labeling Law. To help our listeners better understand these protections, we’ve brought Janelle Smith from the Celiac Disease Foundation into our studio to discuss the laws and how they can help (or potentially hurt) individuals with celiac disease.
An Emerging Tool for Determining Food Safety
November 23rd, 2017
Eating outside of the home, especially in restaurants, can be a difficult experience for people living a gluten-free lifestyle. Cross-contamination happens regularly and even at restaurants with gluten-free menus, busy kitchens and poor communication can sometimes lead to mistakes. On this episode of the podcast, Carla Borsoi from NIMA sensor joins us to discuss the new NIMA device and how it is helping customers determine if the food they receive in a restaurant is really gluten-free.
Celiac Research and Clinical Trials: How YOU Can Get Involved
November 16th, 2017
There are more than 20 innovative therapies under development for treating celiac disease including a vaccine, enzyme therapies, and other drugs. Celiac Disease Foundation CEO Marilyn Geller joins our Children’s National team in the podcast studio to discuss how these therapies are being studied and why patient involvement in research is crucial to their development. Vanessa and Marilyn discuss the importance of patients joining clinical trials and how the Celiac Disease Foundation’s iCureCeliac patient registry is helping researchers advance these important therapies.
Coping Strategies for Parents of Children with Celiac Disease
November 15th, 2017
As a parent, it’s never easy to hear that your child has a chronic medical condition like celiac disease. Parents often feel overwhelmed, sad, anxious, and extremely guilty, especially when their child is diagnosed with a genetic condition that they may have passed on to them. To help parents cope with these feelings and help their families adjust to the gluten-free lifestyle, we’ve brought Dr. Shayna Coburn from Children’s National Health System into the podcast studio to talk about managing emotions and determining when it’s time to seek professional help.
The Business Approach to Gluten-Free Restaurant Consumers
November 11th, 2017
How are restaurants trained to prepare gluten-free food? Is serving gluten-free options helping them increase profits? In this episode of the podcast, Kim Koeller from Gluten-Free Passport discusses the proper practices for a restaurant to offer gluten-free food and how customers can make sure they are dining at a venue that can safely accommodate their dietary needs.
Meal Delivery Services- Can they Be Gluten-Free?
November 10th, 2017
Meal delivery services are popping up like hotcakes and claiming to cater to various lifestyles, but are they suitable for a gluten-free diet? On this episode of the podcast, Vanessa talks about her experiences with three different services and how they accommodate (or don’t accommodate) gluten-free diets, the costs, and pros/cons of various services. Note: The Celiac Program Children’s National Health System does not support or endorse any of these services. The information in this podcast is purely informational to help individuals living a gluten-free lifestyle determine the proper questions to ask to ensure a safe gluten-free meal.
Online Grocery Shopping in Gluten-Free Style!
November 8th, 2017
You’ve probably gotten a coupon in the mail for a grocery delivery service and were likely tempted by the $75 off grocery deals. But are these services providing safe gluten-free foods? On this episode of the podcast, Vanessa Weisbrod and Joyana McMahon from the Celiac Disease Program at Children’s National Health System discuss the pros and cons of online grocery shopping, how various services work, positive and time-saving benefits, and potential areas for concern.
Autoimmune Conditions Related to Celiac Disease
November 6th, 2017
Celiac disease is a genetic autoimmune condition that is linked to several other autoimmune diseases. Renowned expert, Dr. Ivor Hill from the Celiac Disease Center at Nationwide Children’s Hospital joins the Gluten-Free Guide Podcast to break down the science of celiac disease and explain how and why it is common for patients with celiac disease to develop other conditions.
The Manufacturing Process of Gluten-Free Grains
September 19th, 2017
What is the potential for cross-contamination of gluten-free grains? Are companies taking the proper precautions to keep our gluten-free food safe? In this episode of the podcast, we talk with Health Coach Lori Fish Bard to discusses the manufacturing process of gluten-free grains and look at out how companies are working to ensure safety.
Disordered Eating and Celiac Disease
August 16th, 2017
Can celiac disease be misdiagnosed as anorexia? Can people with celiac disease develop an eating disorder? Research conducted by Dr. Rose-Marie Satherley and her team shows that in fact, up to 20 percent of people with celiac disease may also have a form of disordered eating. In this episode of the podcast, Dr. Satherley discusses the research and strategies for managing eating issues associated with celiac disease.
Celiac: Is it Time for Mass Screening?
August 10th, 2017
Should everyone in the United States be screened for celiac disease? Current research by Dr. Edwin Liu and his team at the Celiac Disease Center at Colorado Children’s Hospital is trying to answer this difficult question. In this episode of the podcast, Dr. Liu breaks down the research and offers insight into the future potential for screening children, relatives, and the masses for celiac disease.
A Naturally Gluten-Free Diet: Boosting Health and Nutrition with Every Bite!
August 2nd, 2017
Fruits, veggies, and protein galore! In this episode of the podcast, Krystal Register from Wegmans discusses eating a naturally gluten-free diet and how to get the most nutrition out of every meal of the day. She touches on navigating the grocery store in a positive way and using packaged foods as a minor supplement to nutrient-packed naturally gluten-free foods.
Emerging Therapies for Gluten-Related Conditions
July 26th, 2017
If there was a magical pill to allow people with celiac disease to eat gluten, would you take it? To help families better understand current drug therapies under development for celiac disease, Dr. Jocelyn Silvester from the Celiac Disease Research Program at Harvard Medical School and Boston Children’s Hospital joins our podcast to discuss the research into treatments for celiac disease and gluten-related conditions. She”ll dive into how the therapies would work and the timeframe for release on the market. Dr. Silvester also touches on research to develop tools to better measure adherence to the gluten-free diet.
Better or Worse? A look at the Nutrition of Gluten-Free Specialty Products
July 20th, 2017
Is your gluten-free bagel better or worse for you than its gluten-containing counterpart? Is there value to a gluten-free diet if you don’t have celiac disease? In this episode of the podcast, Pam Cureton from the University of Maryland Celiac Disease Center discusses the nutrition of gluten-free specialty products and how to ensure you’re maintaining a well-balanced gluten-free diet.
Family Travel! A look at Family-Friendly Gluten-Free Destinations
July 13th, 2017
Vanessa and her almost 4-year-old son are talking about fun activities to do for Brandon’s upcoming birthday party. Brandon loves staying in hotels and going to new places, but with his recent celiac diagnosis, things are going to be a little bit more tricky. Brandon is all about Mickey Mouse these days, but can people on a gluten-free diet successfully travel to Disney or other family-friendly resorts? Traveling with a family can be a daunting experience. Add in a gluten-free diet and the challenges can be overwhelming. In this episode of the podcast, Erin Smith – also known as the Gluten-Free Globetrotter — sits down to discuss strategies for family travel and top accommodating destinations.
Navigating the Grocery Store in Gluten-Free Style
July 12th, 2017
Grocery shopping while on a gluten-free diet can be a challenge, but thanks to stores like Whole Foods Market, it’s getting a little bit easier. This week host Vanessa Weisbrod sits down with Alexandra Agostini from Whole Foods Market to discuss how gluten-free shoppers can expertly navigate the grocery store. They’ll discuss shopping strategies, aisle-by-aisle product picks, and how the retailer is helping gluten-free consumers get easy access to high-quality gluten-free specialty products and educational tools.
Management of Celiac Disease- Is Your Doctor Doing Things Right?
June 14th, 2017
Dr. Benny Kerzner from the Celiac Disease Program at Children’s National Health System discusses best practices for the management of pediatric celiac disease to help parents ensure that their children are getting the best possible follow-up care.
How Compliant Do I Need to Be with My Gluten-Free Diet?
June 14th, 2017
What happens if a person with celiac disease doesn’t stick to the gluten-free diet? Does it put you at risk for developing cancers? Bone or reproductive health issues? Malnutrition? Dr. Aline Charabaty from Medstar Georgetown University Hospital Center answers all of our burning questions!
Your Guide to Gluten-Free Grains and Flours
April 28th, 2017
Curious about the dozens of gluten-free flours on the market? We’ll talk about some of the most popular gluten-free flour replacements and discuss how to convert baking recipes into delightful gluten-free alternatives. A look at almond flour, coconut flour, soy flour, millet flour, soy flour, buckwheat flour, quinoa flour, and brown rice flour.
Gluten-Free at Preschool
April 28th, 2017
Host Vanessa Weisbrod sits down with Temple Sinai of Summit New Jersey Preschool Director Amy Damast to discuss how her early childhood education program is accommodating students on a gluten-free diet. She discusses educating teachers, partnering with families, and evaluating food handling processes to ensure a safe environment for every student at the school.
Navigating the Holidays Gluten-Free Style
December 1st, 2016
Vanessa and Emily discuss how their families handle holiday meals and introduce guest Courtney Mesmer, an event planner and president of the DC Metro Celiac Organization. The group will discuss how to approach attending a holiday meal at a family member or friend’s house, tips for being a gluten-free hostess, and planning ahead for holiday travel. They will end with a discussion about their favorite holiday gifts.
Treating the Minds and Bodies of Families Living with Celiac Disease
November 9th, 2016
In this episode, Vanessa and Emily speak with Celiac Disease Program Psychologist Dr. Shayna Coburn to discuss the ways that families can be affected psychologically by a diagnosis of celiac disease. They’ll discuss support systems for parents handling a child newly diagnosed and tips for discussing the condition with other family members and friends. What problems could parents encounter with their child as they go to school, birthday parties, etc? How should parents counsel their children to discuss celiac disease with their peers?
Celiac Disease in Kids and Skyrocketing Gluten-Free Diets
November 8th, 2016
A new paper published in the prestigious journal Pediatrics establishes best practices for the diagnosis, treatment, and management of celiac disease in children. The protocol was put together by a team of pediatric medical experts led by the late Dr. John Snyder of the Celiac Disease Program at Children’s National Health System. Program Founder Blair Raber Joins us to discuss the paper and its impacts on the celiac disease community.
