Help make a difference in the lives of those with autoimmune disease.
Autoimmune diseases occur when the immune system attacks the body’s own healthy cells. There are over 80 known autoimmune diseases and counting, affecting more than 14 million Americans.
Find national and international organizations focused on specific autoimmune diseases, from alopecia areata to vitiligo.
Information, health-related articles, and resources to help you navigate living well with autoimmune disease.
TIPS FOR STAYING WELL
Managing Mental Health with Autoimmune Disease
Living with chronic illness takes a toll emotionally and socially. How can we take care of our mental health?
Browse our resource lists and information via the links below.
Find Medical Institutions Focused on Your Autoimmune Disease
An extensive list of centers, clinics, and hospitals across the United States that specialize in diagnosing and treating various autoimmune diseases.
We support autoimmune disease education and research by funding grants for scientific investigations, holding live talks with experts, and partnering with the Celiac Disease Program to create educational resources.
Comprehensive Educational Resources for Those Living with Celiac Disease
Our celiac-focused resources are a product of GAI’s partnership with the Celiac Disease Program at Children’s National Hospital in Washington, D.C. Visit our Celiac Education page to find information on Gluten Free Education Day, expert celiac talks, podcasts, a gluten-free diet app, and cooking and nutrition videos.
Join Us for Our Next Autoimmune Support Group, July 31st, 10-11:30am PT
Our aim is to help each other live well and feel heard, while not letting disease define us. We encourage members to come as they are, with an open mind and the willingness to nurture a positive atmosphere.
The Global Autoimmune Institute is empowering solutions in the diagnosis and treatment of autoimmune disease (AD) through research, education, and community, while supporting multidisciplinary approaches to wellness.
GAI Featured in Nature Outlook, July Issue
Learn more about the Global Autoimmune Institute as we explain our work, autoimmune risk factors, and research advances in our Nature sponsor feature!
Home » Takeaways from Autoimmune Disease Awareness Month 2021
Autoimmune Disease Awareness Month is celebrated annually during the month of March!
There are millions of people worldwide who are living with one or more autoimmune diseases. For the majority of these individuals, the toll of having a chronic condition reaches far beyond their physical health. The struggle of living with an autoimmune disease can manifest in nearly every aspect of daily life. That’s why we launched a month-long social media event to share important facts, discuss lived experiences, and speak out about the impact of autoimmune disease. Check out our Instagram page for highlights from the #MyAutoimmuneVoice campaign.
There are over 90 known autoimmune diseases. Of the individuals surveyed on day two of our awareness event, the majority had Hashimoto’s thyroiditis. Systemic lupus erythematosus (SLE), Sjögren’s, celiac disease, ankylosing spondylitis, and rheumatoid arthritis were all slightly more common among survey participants, with several people reporting that they have an undiagnosed autoimmune disease.
Rare autoimmune diseases were reported, including myasthenia gravis, immune thrombocytopenia, dermatomyositis, and more.
These results do not necessarily reflect universal autoimmune disease prevalence, but they do provide an interesting representation of our Instagram community.
Other autoimmune diseases, related conditions, and suspected ADs reported by Instagram poll responders.
Many people spend years waiting to be diagnosed with an autoimmune disease. The majority of people who answered our poll waited 3 years for a diagnosis from the onset of their illness. Several more waited between 6 months and 4 years, with the longest reported delay being 38 years.
The length of time between symptom onset and diagnosis of autoimmune disease according to Instagram poll responders.
Autoimmune disease looks different on everyone, but common experiences unite this community. That’s why we asked our Instagram friends to share their experiences with us. The responses were candid, insightful, and inspiring. Here are a few of the things that participants shared with us:
When it comes to autoimmune disease, solutions take time and extraordinary dedication. Researchers, advocacy groups, spoonies, caregivers, and foundations are just a few parts of the movement to promote education, research, and improvements in diagnosis and treatment. A collective goal of the autoimmune disease community is to help others feel supported and seen. No matter where you are on your chronic illness journey, your voice counts! You can help keep the momentum for autoimmune disease awareness going all year long. Here are some tips for raising awareness:
Connect with us on Instagram to join our growing community!